It has taken 13 years for my son’s ultra rare genetic medical condition to be diagnosed. Unfortunately for many parents and carers, they’ll never receive […]
Epilepsy
The Road to Medical Cannabis – Part 1
My son has severe epilepsy. It affects his whole life. He has hundreds of epileptic seizures every day, with brain scans showing constant epileptic seizure […]
Medical Cannabis – Children With Severe Epilepsy Are At Serious Risk Of Harm From New Brexit Regulations
For those who care for children with epilepsy, finding medication that helps to reduce and control their seizures is the most important factor in their […]
I am trapped…
It has now been nine extremely stressful, exhausting weeks of isolation at home caring for my severely disabled son who, we are told by the […]