It has taken 13 years for my son’s ultra rare genetic medical condition to be diagnosed. Unfortunately for many parents and carers, they’ll never receive […]
The Secret Carer
A damaged child – the parents’ story – part 1
When I started writing as ‘The Secret Carer’ for the Yorkshire Times just over a year ago, we had just undergone what can only be […]
Survey on restraint and seclusion of special needs children in English schools
ICARS & PABBS have a new survey for parents of special needs children in England who may have experienced seclusion or restraint in school. https://www.surveymonkey.com/r/UKCaseStudy […]
The Road to Medical Cannabis – Part 1
My son has severe epilepsy. It affects his whole life. He has hundreds of epileptic seizures every day, with brain scans showing constant epileptic seizure […]
Vaccination Injustice For Unpaid/Parent Carers And Those With Learning Disabilities
When I started writing as The Secret Carer a year ago, my purpose was twofold: firstly, to represent and share the life of a full-time unpaid carer […]
Medical Cannabis – Children With Severe Epilepsy Are At Serious Risk Of Harm From New Brexit Regulations
For those who care for children with epilepsy, finding medication that helps to reduce and control their seizures is the most important factor in their […]
Prejudged, Restrained, Secluded
Do you know what these are used for? Are they some sort of police restraint for adults who have committed a premeditated violent crime? Some […]
Disability Discrimination – A Matter Of Life And Death
A shocking report was released this week spelling out the scale of deaths of people with disabilities from Covid-19 in the UK: 22,500 in less […]
I am trapped…
It has now been nine extremely stressful, exhausting weeks of isolation at home caring for my severely disabled son who, we are told by the […]
Protecting the most vulnerable in society
Do you really know what goes on in your child’s special school or, for that matter, mainstream school? Are you a parent, grandparent or carer […]